1/28/13 more chemo and misery

Skylo started more chemo and had an exam on jan 28 , there was some change to his tumors on his right eye but the one they were most afraid of on his left eye had no noticeable change ,they also removed the cataract in his left eye so they could have a better look at the tumor, not the news were had hoped for to be sure , Skylo had his 5 day of this times chemo the day before his first birthday , we had a party for him at the Ronald Mcdonald House , he had fun but mom could tell he did not feel very good , he cryed a lot and just did not seem to happy , just like clockwork a few days later he was running a fever again , yep you guessed it , off to the ER they go , and of course was started on antibiotics first thing , they also discovered that he had another STAPH infection in his line again so they pulled it , he also tested positive for CDIF , that is in his case an infection he got in his intestines from to many antibiotics , he was very very sick for a long time , he was in a very critical state for two or three weeks , he would not smile or eat , all he wanted to do was sleep , we were so worried , it scared me because i was afraid that he just did not want to fight anymore and that he was giving up , i don't think I slept the entire time he was there , the phone would make me jump out of my skin when it rang , his blood pressure was high , his oxygen was very low , his counts took a nose dive and he needed a couple transfusions , it was a nightmare , it really felt like he might lose his cancer battle  , after a few days of being in the hospital they inserted a port that would be covered by skin so maybe he would not get another infection in it

theres kind of a nice side to this new port , he can now take baths again and can even go in swimming pools after it heals of course , what I do not understand is why he couldn't have had this kind of port in the first place , he may not have gotten so sick if he had, if my memory serves me correctly i think he had his next doses of chemo before he was released , a few days after that chemo of course he spiked another fever and was back in the hopsital , more antibiotics , more positive CDIF results , at least there was no infection this time , they figure the fever was from his counts dropping again ,GRRR this is so frustrating , I can see the pattern , why cant the Drs , I think he only stayed a week this time , it was awesome because mom and dad found them a cute little apartment that is not to far from the hospital , the baby was so glad to be home and out of that damn bed DOUBLE GRRRR