Tuesday, April 9, 2013
things sure can change
A year ago the idea of radiation was the last thing to do , in fact the Dr said at the first exam that it is the last thing we want to do and is the last resort , now we are hoping for the okay to start radiation so there will be no more chemo that Skylo must go through , it is such a bag of mixed feelings here , there is so much hope that the radiation will kill the tumors and make chemo not necessary anymore , on the other hand radiation can destroy so much tissue and bone ,it could also make his retinas detach ,and after all of what he has gone through , he still could lose his eyes , wow it is overwhelming to to think of all of that , the risks are low for a lot of the side effects but it seems like for some reason the sweet lil man gets the other percent , this almost feels like there are two paths in front of him and a roulette wheel spinning to decide which one to take , his exam is on Thursday to decide whats next , I'm glad that I'm not the poor Dr's making this decision ,no matter what happens I know that Nina and Stephen will be strong and do what they have to do for their son , they are amazingly strong , I cant believe in a few short weeks my daughter will turn 20 years old , I am so proud of her for not completely falling apart , if Skylo ends up with eyes or not , he will go so far in life , he has the strength of a soldier , and has touched so many lives in his young life , I love you baby boy
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